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Chronic Fatigue & Pain Syndrome
25 February 2015
Posted in About me
Yesterday I've been to the rheumatologist and I have a couple of results. That's some good, bad and worse news though...

The good news is that I do not have rheumatism (that could be found) and there was also no sign in my blood of muscle degradation. Even better, according to the blood works I'm perfectly healthy (Hmmm.... I've heard that a lot before...)

The bad news is that the cortisol levels in my urine were way too low. This mostly happens when there's a stressful situation for a long time. Well, I did have a lot of stress in the past. The worse has been 15 years ago and the last time about 5 years ago. The rheumatologist told me that this could not be the cause of the low cortisol levels. But she did tell me that a low level of cortisol might cause fatigue in the muscles, but it doesn't explain the constant pain I have in them...

The worse part of the news is that I now officially have a diagnosis of Chronic Fatigue Syndrome and Chronic Pain Syndrome. This is something I kinda already figured but I'm not happy with the official diagnosis of it. I mean I'm 46 in 2 months and basically a cripple

The rheumatologist wants to send me to a CFS/CPS center for further examination and treatment, but there's only one in Lelystad. That would mean at least 2 hours of travel by train for me and is not an option. She then remembered that the VUMC in Amsterdam also has a similar center. She decided to send me there for a 2nd opinion (waiting for the VUMC to call me for an appointment - prolly in 2 to 3 weeks from now) with the note that from there they should send me to the CFS/CPS center as well.

With that, I've been to my lawyer as well today for the appeal he's making against the UWV decision that I'm now less unfit for work than before. It was a constructive session and basically, each and every job they've found for me should be scratched. He also advised me to visit my doctor next week (he's on holiday now) to send me to a neurologist and see if the pain and fatigue comes from the nerve system after the long term B12 shortage. He also advised me to ask for some more blood works regarding allergies to synthetic fibers (I am allergic to those and 2 job descriptions let me work with them). Though I'm not sure that's possible to prove that from blood works.

Oh and BTW. My hands (mainly the right one for being righthanded) is starting to ache more and more. Typing this hurts like hell already. I hope that this is not the start of an expansion of the fatigue and pain I have. If so, it would also mean that I should give up programming or slow down big-time on it

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